The Ongoing Saga
Posted By Russ Emerson on April 25, 2007 at 3:26 pm
Another MRI looms on the horizon, coming up in about two weeks. It would be sooner, but the only times they had open were at hours during which I am hopelessly comatose due to my being the night-shift guy. Don’t even bother trying to wake me up at 9am. Not gonna happen.
The MRI had best not be any later than it is. If it were more than two weeks from now, I would doubt my ability to drive myself to the appointment.
Despite the fact that my dosage of Prednisone has been increased — which has most definitely helped — I continue to lose strength and functionality in my legs. I’m having a harder and harder time going up and down stairs. I cannot stand up unsupported for as much as a minute. I’ve had to bring a stool in from the garage to use in the kitchen, because waiting two minutes on my feet for the microwave is more than I can do. Walking 12 feet across the kitchen without the use of a cane is possible only because there’s sturdy cabinetry waiting to support me when I get to the other side… but even then, I usually rely on the cane.
While all this has been going on, I’ve been able to exercise a degree of control over my conscious movements. I can — admittedly, with difficulty — make my legs go where I want them to go when I need to, I can put one foot in front of the other as needed. I can still drive, for instance, even though getting to and into my truck is harder and harder to do.
The problem is that I’m losing control of my feet.
If I lose that, I can’t drive. If I have to, I can crawl up and down the stairs here. But if I can’t drive, I’m completely screwed.
OK, perhaps not completely. My grocery store, for instance, has offered online shopping for the last year or more. You go to the website, make out your list, and they roam the aisles on your behalf. All you have to do is drive down and pick up your order. It’s been a big help lately, but if I can’t drive…? Well, now they offer a delivery service as well. It’s not cheap, but at least I won’t run out of groceries.
But if I can’t drive… how do I get myself to the doctor? To the pharmacy? To my MRI appointment?
I’m screwed. But I’ll make do; there are always taxis, I suppose.
The saga so far:
3/17 — The State of the Russ
3/19 — MRI Complete
3/20 — No Results Yet
3/22 — Anticipation
3/24 — Still No News
3/27 — I Got Nothin’
3/30 — First MRI Results: Diagnosis Delayed
4/3 — Ouch
4/17 — Second MRI
4/21 — Second MRI Results, Sort Of
I should probably set up a separate category for this stuff.
Russ,
I and so many others are praying for you. This is so brutal and unfair. :(
How much does it cost to modify a vehicle to use a hand-operated throttle and brakes? That could be another option, hopefully only short- to medium-term.
John
Russ,
Is there anything I can do?
You know how to get hold of me, please let me know . . .
Robert
I’m keeping you in my prayers. ][ HUGS]